Posts Tagged ‘Health’

The road to nowhere

At Naidex last week, in a flourescent-lit aircraft hanger of a room where the air didn’t move and the colours were bright, a strangely populated world of men in suits, hi-tech wheelchairs, bolshie youth, endearing smiles and earnest faces mingled.

I was only there for the day helping out at the Peoplehub stall, a community interest company set up by people with or interested in personal health budgets. With the help of a few notepads and some Crackerjack-style pens the conversations flowed. Read More…


So how is your daughter?

Why is it 19 years after my daughter first started having seizures that I am at a loss to be honest when people ask the simple question,’ So how is your daughter?’

I run through my range of responses: the downright dishonest, ’ yes, good thanks’ or the ambiguous, ‘just the same as usual’ or the deflection,‘not too bad but I heard you have had terrible flu’ or the little bit more honest, ‘ oh yes, she’s had an awful seizure,’ followed up with the reassuring, ‘but she’s just gone out to yoga tonight’ or the downright disingenuous, ‘ a little bit peaky’.  Read More…


We can’t hear the parents

 

All of my daughter’s life I have fought hard to make her life the best it can be. This has taken me from being a laid back individual to the verge of a nervous breakdown and back. I have in my time been labelled neurotic, challenging, difficult, over-protective, pushy, demanding and unrealistic. At times, I may have been some of these things. I do not apologise. And I know, despite the fact we are now quite settled and work well with the professionals around her, I would not be afraid to fight for her should the need arise again. Yesterday we heard that parents of young people in Winterbourne View were amongst the most disenfranchised parents in the country. How did that happen? Read More…


A Light Touch

For the last 18 months I have been delivering a short talk on the transformative power of personal health budgets. In the same way that has happened in social care it is now possible to have a personal health budget instead of more traditional services like residential or agency care.

The reception has generally been warm. But within every room are the hardline doubters. You can usually spot them at the beginning: arms folded, huddled together, frowning faces.

After the talk come the questions. With recurring inevitability the first question will be regarding financial accountability. Read More…


Whose Health and Wellbeing?

Yesterday, I attended the London Health and Wellbeing Boards conference without really having a clue about what they are. Beyond knowing that along with CCG’s (Clinical Commissioning Groups) they are an important part of the changing NHS landscape and potentially, at least, something as a citizen I should know about. Read More…


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